![]() To prevent the destruction of Hcrt neurons, immunomodulatory agents have been tested, with varying efficacy, probably due to varying degrees of hypothalamic impairment and stages of disease progression. The treatment of NT1 is currently only symptomatic, targeting hypersomnolence and cataplexy. The exact cause of this destruction is still unknown, but the autoimmune hypothesis is strongly favored, involving the interaction of genetic and environmental factors. Type 1 narcolepsy (NT1) is a chronic sleep disorder caused by the selective and irreversible loss of neurons from the hypothalamus, which synthesizes a neurotransmitter: hypocretin (Hcrt) / orexin. Why Should I Register and Submit Results?.Comorbidity and Mortality of Narcolepsy: A Controlled Retro- and Prospective National Study. Harvard Medical School Division of Sleep Medicine. Narcolepsy: Developing New Treatments.Harvard Medical School Division of Sleep Medicine. February 21, 2018. Recently Approved and Upcoming Treatments for Narcolepsy. National Institute of Neurological Disorders and Stroke. Perspectives in Narcolepsy and Hypocretin (Orexin) Research. Journal of the Royal Society of Medicine. Narcolepsy: Hallucinations and Sleep Paralysis.National Heart, Lung, and Blood Institute. Athletes will appreciate her posts specifically about running. She writes honestly about living and working with narcolepsy. Flygare is an attorney and serious runner (she's run the Boston Marathon) and in 2009 she collaborated with Harvard Medical School on a narcolepsy awareness educational program for medical students based on her own experiences. Julie Flygare's Wide Awake and Dreaming: One Step Ahead of NarcolepsyĪ compelling personal blog from the founder of Project Sleep. The website includes a support group and a podcast featuring interviews with real people who have narcolepsy - including a recent episode featuring a young professional snowmobile rider who recently had her first baby. You’ll find practical information about supporting good sleep plus ways to get involved as an advocate for narcolepsy awareness through Project Sleep's Rising Voices of Narcolepsy project.Ī national leader in narcolepsy research and awareness, Wake Up Narcolepsy raises funds for cutting-edge scientific research into this disorder. Check out their smart, compelling videos about real people with narcolepsy - including this one about nurses living with the condition. This nonprofit is dedicated to raising awareness about sleep health. A section on narcolepsy goes beyond the basics, covering the disorder's effects on work, school, relationships, and more. The go-to destination for consumer health information about all things sleep-related, this website features articles reviewed by a team of well-credentialed sleep specialists. Consumers can find recent updates about narcolepsy - including FDA-approvals of new drugs - and patient guides to common sleep problems that may affect people with narcolepsy. In addition to extensive information aimed at healthcare practitioners, this website from the organization that accredits sleep centers and medical sleep practices also has a ton of info for patients. Researchers are looking for ways to stop the destruction of hypocretin before it happens, in order to prevent narcolepsy in people who are at risk for developing the disease. While there's currently no way to prevent narcolepsy, promising research may lead to methods that allow scientists to replace the missing brain chemical hypocretin, according to Mignot. Learn More About Navigating School and Learning With Narcolepsy Prevention of Narcolepsy These adjustments may include help with note-taking, extra time for tests, a flexible schedule, and nap time. ![]() It's also important to know that students with narcolepsy may be legally eligible for specialized education plans that provide accommodations so they can learn in an environment that meets their needs. Narcolepsy doesn't affect intelligence, but it can affect someone's ability to learn, because of excessive drowsiness during the day, sleep attacks, sudden loss of muscle control, or the need to take breaks.ĭiagnosis and treatment is important for students with narcolepsy, as is clear communication between the student, parents, teachers, and school administrators. Learn More About Treatment and Medication Options for Narcolepsy How Narcolepsy Affects Learning Your doctor may recommend that you take a test of how well you stay awake over extended periods of time to help evaluate how well your medications are working and whether you should limit driving. Depending on your symptoms, your doctor may advise you to avoid night driving and long drives, or to take naps before you set out or during breaks scheduled throughout your trip.
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